Friends and Family,
Thank you dearly for your continued prayer and encouragement for our family! Drew and I have received more calls and texts than we can count saying you are praying for our sweet Sadie. She is already so loved and blessed by you; words cannot express our gratitude for that!
I wish I could sit down with each of you individually and share everything we have learned so far but due to the outpouring of love and support, there are just too many of you and there just isn't enough time... (what a blessing!)
Today we had a fetal CT scan at Children's Memorial Hermann Downtown. Our Maternal Fetal Medicine (MFM) doctor initially suggested an MRI but after speaking with other fetal specialists, they, as a team, felt that a CT scan would give a more accurate picture. We were instructed to check-in at my MFM doctor's office first. The radiologist did a very brief (less than 5 minute) ultrasound to see exactly where my uterus started and stopped and then used metal stickers to clearly define where the scan should be targeted. The scan itself took less than 15 seconds once I was positioned on the table. Modern medicine still blows my mind...the idea that a machine can draw a complete 3D picture of every bone in my unborn baby's body amazes me!
As far as CT results go...we have our follow up appointment tomorrow June 1, 2018 at 1:00pm. At this appointment our MFM doctors will do yet another in depth ultrasound (no complaints here, I love seeing my baby girl so often!!), sit down with our team of doctors and share the findings from the CT scan! Numerous people have asked me "Why do this testing? Is it going to change your mind about continuing the pregnancy?" The answer? ABSOLUTELY NOT! Our doctors have been wonderful to respect our wishes to carry this baby for as long as the Lord allows us to! The reason for the testing is so that the doctors know how to move forward with her care. We are unsure whether or not she will make it to birth but if she does, the doctors need to know how to treat her and be able to form a treatment plan and team to give her the best chance of survival!
The road ahead is long, unknown and quite scary. As I was talking with a friend at church on Sunday I was whining that I HATE not knowing what tomorrow will look like for our Sadie, what the next 5 years will look like for our family...She just smiled and said "None of us are promised tomorrow...no one knows what life holds..." It was a "should have had a V8" moment...Of course we don't...I know that...But this wasn't in MY plan! I took a step back and noticed that what I was mad about was the loss of my false sense of control. Any control we think we have is false... You can plan your life or even the next hour of your life...but its not guaranteed. I was grateful for the gentle reminder that God is in ultimate control...my grip is loosened and my hands are open.
"the LORD gives, and the LORD takes away; blessed be the name of the LORD." Job 1:21
~Jenny
Thank you for sharing your heart. That is something we all could learn better. Especially as parents we cannot control all that comes into our kid’s lives and we must live with open hands. Thank you for the reminder. Praying for you all.
ReplyDeleteThank you for sharing this with us. Your faith is a testimony. I will continue to pray for healing for sweet Sadie's bones. This bible verse helped us with Casey.
ReplyDeleteJob 40:18 - His bones [are as] strong pieces of brass; his bones [are] like bars of iron.